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07/28/2009

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WarmSocks

Do we tell, or do we know why you haven't?
Usually, I don't tell (wrote a whole post about it). But RAGuy had his Power of 10 post, and it got me thinking. Sure, not many people know about it, but they're not going to learn if nobody tells them. I wrote a short note to everyone in my address book: "In an effort to spread the word about an often misunderstood disease, I am asking you to take one minute to read Rheumatoid Arthritis Guy’s 60-Second Guide to RA. Here is your chance to help, simply by being informed. And, if you then send this message on to (at least) ten people, we have the power of ten at work. Please help spread the word."

I've gotten some very good responses. From, "That was really well written," to "Thanks for the link," to "Is that what you have? I had no idea!"

Good luck meeting new people - it's hard in a new location even without being sick.

Kim H

Thanks! It is hard to meet new people.

Actually, there are a number of reasons I haven't told potential friends about it. And I'll write about them at some point, later on.

Lissa

I have really enjoyed reading through your blog, Kim, and I can so relate to what you have said here.

It really is very difficult to meet new people and to make friends when you work at home (or don't work, as is my case), or when you have no kids (or they are grown and pretty much have their own lives, as is my case), or when you have RA and either: 1) cannot join in the types of activities or groups you'd really like to join because you cannot actually do the activity (as in my case, I would so love to do paintball, but no way would I last more than 2 minutes before being "killed" when I can't RUN to hide behind a tree or CROUCH behind a strategically placed bale of hay! LOL) or 2) are afraid to commit to some outing with new friends in case you are not up to it when the day rolls around, thereby disappointing them.

And no, it's rare for me to tell someone I have just met or don't know well that I have RA, mainly because I know they will have no clue as to just how much the pain and/or fatigue of the disease can limit me (and I really don't relish the thought of explaining the whys, because I'm always afraid people will think I'm exaggerating), but also because I fear that if anyone I don't know well knows I am sick, that will be an automatic excuse for them to decide they don't want to know me any better. Perhaps I am wrong about this and unfairly misjudge people.

I hope you enjoy meeting your new online friends in person, and that you'll be able to find some friends in Chicago soon.

Pollyanna Penguin

I guess I know why ... I usually tell people once I know them, as soon as possible, because it doesn't show (lukcy me!) and I'd prefer that they understand why there are things I can't do, for all I 'don't look sick' ... but would I tell them before meeting? I doubt it!!

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